ALS-Lyme misconceptions »

Deliberate lies spread about ALS for financial gain

“Lyme disease does not cause ALS”

Jeffrey D. Rothstein, “ALS is its own disease” stakeholder/gatekeeper told this lie in the Washington Post, during the 2014 ALS Ice Bucket Challenge. In the article he lied several times. He lied about neurologists using Lyme tests to rule out Lyme. As documented in our free ebook, neurologists admitted that in 4 out of 5 cases, they never do a test to rule out Lyme. Some neurologists always refuse a Lyme test our of (ideological) “principle”. Others deliberately use a test with a 60% or higher false negative outcome, such as the ELISA. Mr. Rothstein also claimed that there is no such thing as chronic Lyme disease, because “ALS comes out of the blue”, implying that Lyme Neuroborreliosis is not something that comes out of the blue, which is a preposterous assertion. And of course, we have overwhelmingly documented that Lyme can and does cause ALS at least in many dozens of cases. So he lied three times.

Rothstein likes to present himself as a “World Leading Expert” and a “Thought Leader” and he certainly is a powerful figure in the political arena denying a cure for ALS patients and benefiting from the research grants. He’s a modern-day quack, one that got rich over the bodies of Lyme patients. He and others found a way to make money denying treatment to Lyme patients: Just call their symptoms ALS or MS or Alzheimer or Parkinsons and make money on symptom relievers, research grants, consultations, tests etc. Lyme has become a cottage industry of “ALS experts”, “MS experts” and other “world leading experts in thought leading”.

Rothstein-als-quack

Rothstein, when confronted with the for him uncomfortable fact that IV Rocephin helps ALS patients (not spectacularly though, because it only penetrates the blood-brain barrier in the presence of acute inflammation which it cures in days, making it useless to treat the brain parenchyma) made up the story that Rocephin helps because “it protects the nerves against glutamate”. Of 1000+ compounds tested, the only ones that have any efficacy against ALS are antibiotics, but he spins this to keep ALS “it’s own disease” so he can keep being a “world thought leader” and draw a nice paycheck and avoid a class action lawsuit for malpractice. Mr. Rothstein’s objective is that a cure for ALS arrive after he’s retired, because he likes money. Dr. Rothstein is a world leader in exactly nothing. Dr. Rothstein has not contributed to a single extra day in the life of a single ALS patient, whereas we have saved the lives of an increasing number of ALS-misdiagnosed Lyme patients by proving that they may very well have Lyme instead of “ALS”.

“Not everyone who contracts Lyme disease develops ALS, in fact not very many. Not very many PALS have Lyme disease. My husband did not have Lyme disease, not by any symptoms, and all blood work for Lyme was negative.

So, whilst your suspicions may be correct, and the Lyme infection may have triggered ALS in your brother, it can’t be taken for a leap across the chasm to then state that Lyme causes ALS.”

Translated:

“Neurologists keep believing that Lyme has nothing to do with ALS, and I keep believing those neurologists because I agree with the neurologists that a test that has 60% false negative results is accurate and I also agree that when an ALS patient has both ALS and Lyme, that the Lyme is irrelevant to the ALS. Also, the realization that a little due dilligence might have been able to save my husband is too much to bear so I choose to disbelieve the facts and rather believe an authority figure.”

“I choose to ignore the fact that Lyme tests are extremely unreliable with a huge percentage of false negatives, and I choose to ignore the research that shows that Lyme bacteria have been found in (human as well as animal) saliva, tears, semen and even mosquitoes and that the majority of people bitten by ticks never notice the bite because their nymphs are hardly visible with the naked eye and the majority of bites do not produce an EM rash.”

“It is unlikely that shooting bullets at a person can cause this person to die, because there are lots of people that got hit by a bullet and they survived”.

 

dumb-doctor

 

“Lots of people with ALS took antibiotics for ear infections etc. and they neither improved nor got worse, so antibiotics have no effect.”

Translated:

“I am the biggest pharmacology- and biology expert in the world and medical science got it all wrong. All those ALS patients that improved on antibiotics are delusional liars. I can tell you that there is no such thing as a blood-brain barrier and a difference between antibiotics that pass it and those that do not. Neither is treatment dose or duration relevant. Trust me.”

Note how even Mr. Rothstein, the self-declared “worldwide thought leader and ALS expert” concedes that antibiotics work against ALS.

 

David Martz, the doctor who cured his ALS David Martz, the doctor who cured his ALS

Dr. David Martz refused to accept his ALS diagnosis so he researched the “disease” and decided he wanted to get tested for Lyme. He tested negative on a whole range of Lyme tests, until he …

Lou Gehrig had a house in Lyme Lou Gehrig had a house in Lyme

Lou Gehrig, the world’s first ALS patient (ALS is often called “Lou Gehrig’s Disease” in the US) owned a holiday home in Lyme, Connecticut where he spent a lot of time gardening over the years. …

Ceftriaxone does not reach the brain Ceftriaxone does not reach the brain

Under normal circumstances, Ceftriaxone (brand name Rocephin) does not enter the central nervous system and therefore is useless against ALS or Lyme disease, especially in the doses typically used.

Trials to treat ALS with Ceftriaxone are …

ALSUntangled prevents ALS cure by disinfo for profit? ALSUntangled prevents ALS cure by disinfo for profit?

ALSUntangled is a group of people funded by companies with a strong financial interest in developing and marketing symptom-relievers for ALS. ALSUntangled also accepts money from the Robert Packard Center, which in turn gets their …

Censorship: The uphill struggle for ALS-Lyme awareness Censorship: The uphill struggle for ALS-Lyme awareness

I have been kicked off alsforums.com, the largest ALS forum on the web. My transgression? I was giving away copies of my free eBook “When ALS is Lyme”. The book presents peer-reviewed published medical research, …

Antibiotics often work against ALS – in spite of medical trials denying it Antibiotics often work against ALS – in spite of medical trials denying it

It is rare to find reports in medical literature of cases of Borreliosis-related cases of motor neuron disease that cleared up with antibiotics, but they do exist: [1] Anecdotal evidence abounds however:
“I have to chime …

Many PALS have Lyme Many PALS have Lyme

On ALS forums, it is almost common knowledge that “Everyone tests positive for Lyme” when the tests are sensitive enough, such as with the IGeneX test, that also includes bands 31 and 34, which are …

Antibiotic trials for ALS are set up to fail Antibiotic trials for ALS are set up to fail

Because there have been many anecdotal reports of antibiotics helping ALS patients, there has been considerable interest in trying antibiotics for this condition. Clinical trials have been conducted, testing Ceftriaxone and Minocycline. It is however …

False: “Lyme is unlikely to cause ALS” False: “Lyme is unlikely to cause ALS”

A misinformed neurologist once said: “It would be unusual for the bacterium that is responsible for Lyme disease to lead to both upper and lower motor neuron signs and symptoms as well as the progressive …

Myth: “IGeneX Lyme tests are always positive” Myth: “IGeneX Lyme tests are always positive”

Dr. David Marz, the MD who had been diagnosed with ALS but got better with antibiotics after testing positive for Lyme, tested Lyme-negative several times on the much-maligned IGeneX tests, until he used antibiotics prior …

Almost all ALS patients are Lyme-positive Almost all ALS patients are Lyme-positive

It’s not just the Halperin study (quoted in my book downloadable for free on the left) that found nine out of ten ALS patients infected with Lyme.
Dr. Martin Atkinson-Barr, CPhys PhD studied at Cambridge and …

Study: 9 in 10 ALS patients infected with Lyme bacteria Study: 9 in 10 ALS patients infected with Lyme bacteria

There have been several studies that found a strong link between Lyme disease and Amyotrophic Lateral Sclerosis. The Halperin paper is one. The Halperin paper found Lyme infection in nearly all ALS patients in their …

Myth: ALS is a disease Myth: ALS is a disease

It may sound harsh but it is the truth: ALS is not a disease – and anyone claiming otherwise will fail to provide evidence to such.
ALS is most accurately defined as a set of “signs” …

Myth: ALS is a motor neurone disease Myth: ALS is a motor neurone disease

Recent published research shows that the majority of ALS patients suffers from substantial neuronal damage above and beyond that to motor neurons – redefining ALS as a generalized neurological syndrome affecting the entire brain, with …

Myth: ALS is a muscle disease Myth: ALS is a muscle disease

Many people are unaware of the fact that ALS always only affects the central nervous system (brain and spinal cord), never the muscles directly. In Germany, ALS is generally called a “Muskelkrankheit”, a muscle disease.[1] …

Grass and bare legs: Italian soccer ALS cluster Grass and bare legs: Italian soccer ALS cluster

Italian soccer players worldwide have a six times greater chance of getting ALS than the average Italian. This risk is unrelated to general physical activity or doping, because Italian basketball or volleyball players have no …

Huge ALS cluster at Kelly AFB ignored by authorities Huge ALS cluster at Kelly AFB ignored by authorities

The largest ALS cluster to have been identified so far is amongst employees of Kelly Air Force Base, decommissioned in 2001. The families of the victims declared to investigators that a total of 140 employees …

Mascoma lake ALS cluster points to Lyme disease Mascoma lake ALS cluster points to Lyme disease

People who live around Mascoma Lake are 25 times more likely to get ALS than other people in New Hampshire. [1] When this fact became published by Neurologist Dr. Elijah Stommel of the Dartmouth-Hitchcock Medical …